Why diagnostic delays cost more than time

The cost of delayed diagnosis in rare disease is often measured in years. It should also be measured in dollars, clinical capacity, and missed opportunities for better care. Rare disease affects 1 in 10 Americans, and on average, the diagnostic odyssey for a patient with rare disease costs over $220,000 in avoidable medical fees and lost income. It’s significant time and money that patients and families can’t afford to lose. And it doesn’t end there. The downstream economic impacts are als...