She has an ultra-rare disease. Now this N.S. girl will be one of the first to test a possible cure

Harper Tanton, a young girl from Nova Scotia with CTNNB1 syndrome, an ultra-rare condition, is set to join a groundbreaking clinical trial that could offer a potential cure. She'll be one of the first children worldwide to benefit from this pioneering research. This trial is crucial as there are currently no effective treatments for CTNNB1 syndrome, which causes developmental and speech delays, among other challenges. Participating in this trial offers hope not just for Harper, but potentially for other children with this rare disease.