My son is fighting for his life. The FDA doesn't seem to care.

I’ve been fighting Duchenne muscular dystrophy for 40 years. My brothers Angelo and Antonio died from it at ages 20 and 22, respectively. Antonio died in 2015, when my son, Ryu, was barely a toddler and had already been diagnosed with the same terminal illness.My childhood memories are of praying for my brothers, caring for them with my mother, and Mom taking all five of her kids to church almost every day. I always asked God to heal my brothers, and — after Ryu was born — I added him to those p...