Jesy Nelson reveals heartbreaking reason she’s ‘hit pause’ on filming reality show saying ‘I’m an honest person’

WHEN Jesy Nelson planned on making a TV documentary about life after Little Mix, she had no idea it would feature the heart-wrenching moment she discovered her twin daughters have a life-limiting condition. Despite only recently turning one, Ocean Jade and Story Monro – with the help of their mum – have helped force through groundbreaking change in the NHS to make screening for SMA available on the NHS for newborns in England. Jesy Nelson’s new Life Changing documentary is out on Prime Video today Credit: Amazon Jesy has opened up to The Sun Credit: Instagram It’s feared the girls will never be able to walk after a late diagnosis of the life-threatening condition Spinal Muscular Atrophy Type 1. But since celebrating her new Prime Video show, Jesy Nelson: Life Changing, the singer has told The Sun she’s hit pause on production for any future series. Sign up for the Showbiz newsletter Thank you! She said: “I think mentally I need a bit of a break because it really is a lot to do that every day and I really want to focus on my girls as well. “There’s so much that they need, so much care that needs to be put into them and there’s so many hospital appointments. “I just think for my own sanity. I need a bit of a break from the cameras. “I’ve always been open and quite an honest person. Sometimes it gets me into trouble. “So it’s not so much about privacy, it’s more for my mental health. Sometimes I need to wake up and there not be a camera there. “The film crew that I work with have literally become my family, that’s what it feels like now. They know everything about me. Most read in Showbiz She is a doting mum to Ocean Jade and Story Munro Credit: Instagram Her twin daughters were diagnosed with life-threatening condition Spinal Muscular Atrophy Type 1 Credit: Instagram “So it’s not even that I don’t feel comfortable with them or anything like that. “It’s just a lot to do every day when you’re going through something this intense.” Life Changing reveals the moment Jesy finds out her girls have been diagnosed with SMA. In an emotional chat with The Sun, the singer admits the the guilt she carries and worries her children will blame her, when they’re older, for not spotting the signs sooner. Any delay in treatment increases the chance of permanent nerve and muscle damage. It’s now likely the girls will not be able to walk. Speaking candidly, Jesy admits the success of her campaign – about adding screening for spinal muscular atrophy to the NHS‘s newborn blood spot test – was a tough pill to swallow. Every year 50 babies born with the condition will now find out they carry the genetic condition at birth. It means they can be given treatment before nerves and muscles are damaged beyond repair. Jesy said: “I’ve not stopped crying, I don’t know what’s wrong with me. I just keep going through waves of emotions. I’ve had an outpouring of messages from families within the SMA community. “It’s just a real weird one because obviously there’s a lot of mixed emotions. I think for people dealing with children that have got SMA, who got diagnosed too late, feel it’s almost a bit bittersweet. Jesy Nelson: Life Changing is available exclusively on Prime Video now. Comment now