Jesy Nelson blow as SMA babies 'have been forgotten' after Wes Streeting resigns

Jesy Nelson and other parents of babies affected by spinal muscular atrophy (SMA) rallied in Parliament to demand that all newborns be tested for the condition after Wes Streeting resigned from his role. Their call highlights the urgent need for comprehensive testing to ensure early intervention and better outcomes for affected children. This advocacy is crucial because SMA can lead to severe health issues if not identified early, and the departure of a key figure in health policy raises concerns about the future of such initiatives. The spotlight on SMA testing underscores the importance of ongoing political and public support for rare genetic disorders.